The Breathlessness Podcast
By Breathlessness Podcast
The Breathlessness PodcastJun 18, 2022
Conversations as Interventions with Professor Marie Williams
Episode 5: Conversations as Interventions with Professor Marie Williams
In this episode Dr Ann Hutchinson talks to Professor Marie Williams
Show Notes:
The importance of How we explain breathlessness
The dichotomy of patient perspective and medical practitioner perspective on breathlessness
Belief and expectations
Predictability
Pathology vs multifactorial diagnosis
The long reaching consequences of how we explain breathlessness
What Marie is working on
BIo
Professor Marie T Williams is a physiotherapist who leads the Persistent Breathlessness stream in the Innovation, Implementation And Clinical Translation in Health (IIMPACT) research concentration, University of South Australia. Her research interests include evidence-based approaches to chronic breathlessness including assessment, interventions (exercise, psychological and novel approaches) and education as an intervention for people/carers living with chronic breathlessness and clinicians.
References in this podcast
Understanding dyspnoea by its language -https://erj.ersjournals.com/content/25/2/380.longG. Scano, L. Stendardi, M. Grazzini
Quantification of dyspnoea using descriptors: development and initial testing of the Dyspnoea-12 - https://thorax.bmj.com/content/65/1/21.long
J Yorke, S H Moosavi, C Shuldham, P W Jones
Breathlessness Podcast Episode Ep3 -
Apple Podcasts - https://podcasts.apple.com/gb/podcast/long-covid-managing-breathlessness-and-fatigue/id1523315873?i=1000493632603
Spotify - https://open.spotify.com/episode/2P78OsUTpWOhMOH4HSnrl7?si=krKF4pceQh6KrJPYNVH4sA
Please email thebreathlessnesspodcast@gmail.comwith any comments or queries
The Breathlessness Podcast is sponsored by the Dyspnea Society. To become a member please go their website for details - The Dyspnea Societyand contact Professor Andrew Binks
This podcast is produced by RogueSpirit podcasting - please email david@roguespirit.co.ukwith any enquiries.
The Muscular Origin of Breathlessness - Dr's Jensen & Lewthaite
Episode 4:The Muscular Origin of Breathlessness
In this episode Dr Sara Booth talks to Dr Dennis Jensen and Dr Hayley Lewthaite
Show Notes
The physiology of breathlessness
How past experience affects the psychology of breathlessness
Fear and the mismatch between ventilation expectation and physical capability.
Exercise: The cause and the treatment
Improving the effective dimensions of breathlessness
The benefit and problems of individualised research
Peer & supported exercise experiences
After care models
Bios
Dennis Jensen is an Associate Professor at the Dept of Kinesiology & Physical Education, McGill University; Canada Research Chair in Clinical Exercise & Respiratory Physiology. Dennis's research focuses on identifying the causes of activity-related breathing discomfort (dyspnea) and exercise intolerance in health, variants of health (e.g., elderly, obesity) and in patients with chronic cardiorespiratory disease, specifically chronic obstructive pulmonary disease.
https://www.mcgill.ca/cerpl/dennis-jensen-phd
Hayley Lewthwaite is a postdoctoral research fellow at the Clinical Exercise and Respiratory Physiology Laboratory of McGill University, Montreal, Canada. Hayley's research focuses on optimising the assessment and management of activity-related breathlessness in people with chronic lung conditions. Hayley has a particular interest in exploring novel adjunctive therapies to exercise training for the management of breathlessness.
https://www.linkedin.com/in/hayleylewthwaite
https://twitter.com/hlewthwaite
Please email thebreathlessnesspodcast@gmail.comwith any comments or queries
The Breathlessness Podcast is sponsored by the Dyspnea Society. To become a member please go their website for details - The Dyspnea Societyand contact Professor Andrew Binks
This podcast is produced by RogueSpirit podcasting - please email david@roguespirit.co.ukwith any enquiries.
Long Covid: Managing Breathlessness and Fatigue - Dr Anna Spathis
Episode 3: Long Covid: Managing Breathlessness and Fatigue
Dr Anna Spathis is a Consultant in Palliative Care and Consultant Lead for Breathlessness Intervention Service- and you can learn more about her here - https://www.phpc.cam.ac.uk/people/pcu-group/pcu-senior-academic-staff/anna-spathis/
Show Notes
In this episode Dr Spathis talks with podcast host Dr Sara Booth about :-
The Effects of Covid
Exploring the different types of patient being treated
The difficulties of Long Covid
Managing symptoms
Vicious Cycles of emotional responses
Remote working
Evaluating outcomes -
The variety of referral services
consequences of the lack of understanding on the patient group
The importance of Transdiagnosis
Papers mentioned in this podcast
Please email thebreathlessnesspodcast@gmail.comwith any comments or queries
The Breathlessness Podcast is sponsored by the Dyspnea Society. To become a member please go their website for details - The Dyspnea Societyand contact Professor Andrew Binks
This podcast is produced by RogueSpirit podcasting - please email david@roguespirit.co.ukwith any enquiries.
Opioids & Chronic Breathlessness - Assoc. Prof. Natasha Smallwood
Episode 2 - Opioids & Chronic Breathlessness - Assoc. Prof. Natasha Smallwood
Assoc. Professor Natasha Smallwood is a consultant respiratory physician at the Royal Melbourne Hospital in Australia, where she established and leads an integrated respiratory and palliative care service for people with advanced non-malignant respiratory illnesses. She is a principal research fellow at the University of Melbourne and holds various research grants to understand the perception of breathlessness and investigate new treatments for severe chronic breathlessness.
IN this episode she reviews and discusses the clinical use of opioids in people living with chronic breathlessness with host Dr Sara Booth
Please rate and review the show on iTunes and don't forget to let us know your opinion on social media or at thebreathlessnesspodcast@gmail.com
This podcast is sponsored by The Dyspnea Society. To become a member please visit http://dyspneasociety.com/Dyspnea_Society/The_Dyspnea_Society.htmland contact Professor Andrew Binks
This podcast is produced by RogueSpirit Podcast - email david@roguespirit.co.uk for any enquiries
Prof. Havi Carel - Phenomenology of illness
Prof Havi Carel - Phenomenology of illness
Dr Sara Booth in discussion with Professor Havi Carel
Havi Carel studied for a BA and MA at Tel-Aviv Universityand was awarded her PhD by the University of Essex. She was lecturer at the University of the West of Englandthen moved to the University of Bristolas a senior lecturer and later promoted to professor.
Her research interests include philosophy of medicine, phenomenology, philosophy of death, epistemic injusticeand health, illness, and children, and film and philosophy. Carel is best-known for her work on the phenomenology of somatic illness, and has led AHRC-funded project on concepts of health, illness, and disease (2009–11), a Leverhulme Trust-funded the lived experience of illness, a British AcademyMid-Career Fellowship and currently has a Wellcome TrustSenior Investigator Award funded project, 'The Life of Breath'
In 2006, Carel was diagnosed with lymphangioleiomyomatosis, a life-limiting lung disease, and much of her academic work reflects her own lived experiences as an ill person.
Show Notes
00m - intro to Havi and the study of phenomenology
2m - Havi’s own experience of breathlessness
4m the difference between normal and pathological breathlessness
6m the politics of breathlessness and symptom discordance
9m The Wellcome Trust Life of Breath investigation
15m Improving care for people with breathlessness - Exploring the holistic nature of breathlessness treatment
16m attitude towards illness. Is it a norm rather than an aberration?
21m - Her book Illness and it’s influences and the geography of illness, social architecture of our lives
27m - belief systems, perspective and the benefit of philosophy
33m - testimonials - effecting lasting change in medical practice
Find out more about the Wellcome Investigation - https://lifeofbreath.org/
Breathlessness Podcast Trailer
Meet Dr Sara Booth and Dr Shakeeb Moosavi.
In this short episode the Dr's introduce you to their work, share their passion for progressing the treatment of Breathlessness and let you know what to expect from this upcoming series